Friday, 12 February 2016

Hearts and Love - #WotW

This week my Word of the Week is:


It's all been about hearts this week and a little bit of love....

It's CHD Awareness week I have shared a few posts around that subject....I did my bit supporting the wonderful Tiny Tickers charity who improve the detection, care and treatment of serious heart conditions in babies....

If you want to know more about Congenital Heart Defects do go and have a read of the lovely Louise's blog Little Hearts Big Love....She has been sharing posts too....

We got a letter through this week about the genetic testing that our heart doctor put us forward for at the girls last appointment....You can read our full story about what has gone on with our hearts....Part One and Part Two.

They offered us one in December but I really didn't fancy traveling to central Newcastle two days before Christmas....So now we have an appointment for April.

We are hopefully going to find out whether I passed the girls heart defects on to them which is highly likely as we all have nearly identical hearts. Surely it can't just be bad luck?.....We will also find out whether the girls will pass their heart defects on to their children....I know they are years off having children but it will be nice to know. Well not exactly nice but we will be prepared....This appointment is going to shape their future. I'm very nervous but interested to know too....

In Other News:

Stu and I said we weren't doing Valentines day presents this year....He only went and bought me something and ruined the whole plan so I had to get him something too.....Men are so hard to buy for Valentines day.....Well my man is. He's not into lovey dovey teddies and pretty things so I went down the Star Wars theme and bought him some things I know he would love.....


It's the first time I've used the Truffle Shuffle website and I am really impressed. I ordered lunchtime on Wednesday and everything arrived Thursday morning....I will be using them again. They have everything Stu loves....hehehe

Today Becky is taking her Valentines day card into school for her boyfriend....hehehe They have such a sweet relationship....They are the best of friends and have now being a couple for well over a year now. Ahh! Young love. They still haven't kissed yet though. Phew!

For Ellie this week has all been about gymnastics....She had two practices after school and the big competition yesterday....Her school didn't win but she had a lot of fun.

The Reading Residence

Somewhere...someplace...today. #CHD


Somewhere...someplace...today... 
A family is waiting to hear... 
Is something wrong with their baby? 
The answers aren't quite clear... 

This family has entered an unwanted world... 
And they just don't know what to expect... 
Somewhere...someplace... today 
They first heard the words: heart defect. 

And how they hoped this was not true... 
And thought... this cannot be... 
I too... know just how this feels... 
For one day...this was me.

Somewhere...someplace...today... 
A man and a woman embrace... 
Their baby is in surgery... 
They long to see her face... 

They haven't got to hold her yet... 
Without...a cord or line... 
They pace the room awaiting news... 
And hope she'll be just fine. 

Prayers fill this busy waiting room... 
And mum and dad are scared... 
Somewhere...someplace..today... 
The tiniest hearts are repaired.

Somewhere...someplace...today... 
A child's growing fast... 
Smiling,laughing,thriving... 
His mum thinks...can this last? 

It's almost easy...to forget... 
That anything is wrong... 
Somewhere...someplace..today... 
Her child seems so strong.

Somewhere...someplace...today... 
A little boy fights...just to live 
A father holds his tiny hand... 
His love...all he can give... 

The doctor's are all baffled... 
They fear that he might die... 
Somewhere...someplace...today... 
A family says goodbye...

Somewhere...someplace...each year.. 
More than 40,000 families will see... 
What it means...when something's wrong... 
They'll face a CHD. 

Today...for just a moment... 
Stop...remember...reflect... 
Make time to tell someone you know... 
"I've been changed by a heart defect".

Author - Stephanie Husted

Thursday, 11 February 2016

Tiny Tickers #CHD

Myself and both of my girls have heart defects and both my girls had open heart surgery in 2009. You can read our story....Part One and Part Two.

My girls heart defects were not picked up during their routine scans.....If it wasn't for Ellie jamming her fingers in a door and the anesthetist picking up on the heart murmur who knows what would of happened.....My girls would not have lived past their late teens that's for sure!! 


Tiny Tickers is a small national charity that aims to improve the detection, care and treatment of serious heart conditions in babies....They were founded in 1999 by a world-renowned fetal cardiologist when she realised that many of the babies she was caring for could have been helped earlier.

One in roughly every 125 babies in the UK has a heart problem – that’s more than 3,000 newborns each year. But fewer than half of those are spotted during pregnancy and, in some parts of the UK, detection rates are as low as 1 in 4. That means around 1,000 newborns leave hospital every year with no one realising they have a life-threatening heart condition.


They want to increase early detection rates of cardiac conditions....Rates for heart problems being detected during pregnancy have doubled since they launched! They train sonographers to spot defects during routine pregnancy scans, support families with a diagnosis, campaign to improve service standards and generally raise awareness!

Early detection also means that parents-to-be can get the support they need to prepare them for the future meaning fewer dangerous and costly emergency admissions to hospital, fewer cancelled planned operations because of emergency admissions, and less strain on emergency transport services. 

Tiny Tickers works to ensure that every baby born with a heart defect has an equal chance to fight their condition, and lead a healthy and normal life.

With your support, they can achieve great things:

£5 Pays for them to help 3 families who have just received a diagnosis of CHD by sending them a support booklet giving them vital information and advice on what to expect from the coming weeks.

£10 means we they send pregnancy information packs to 15 mums-to-be telling how they can help their sonographer check their baby’s heart health.

£25 means they can send vital detection information to 40 baby clinics / GP surgeries.

£100 enables their experts to provide specialist on-site training for a sonographer.

£250 helps them set up a peer-to-peer support network by training a volunteer who can work with families who receive a diagnosis of CHD.

£500 pays for their trainers to provide a two-day specialist on-site training programme for sonographers in a hospital’s screening unit.

£1,000 could pay for a half-day training conference for up to 100 sonographers.

You can help provide a better start for tiny hearts. Make a single or regular donation to help babies with heart defects have a fighting chance.

You can also donate any amount up to £10 using your mobile phone. Simply text “TINY11 £amount” to 70070 and Tiny Tickers will receive 100% of your donation plus Gift Aid.


Tuesday, 9 February 2016

Shopping for hearts...

February is all about hearts isn't it....As well as Valentines Day it is also National Heart Month and this week it is Congenital Heart Defect Awareness week....

I always seem to notice things with hearts on more at this time of year and there is so much out there. Not just things for Valentines day but things to have all year round....




5 Piece Hearts Storage Set - £19.99 - Studio
Heart Knife Block - £36.00 - Next
Heart Cutout Wooden Spoon - £3.00 - John Lewis
Mason Cash Hearts Mixing Bowl - £13.99 - Dunelm
Heart Cake Tins - £24.99 - Lakeland
4 Wine Hearts Glasses - £6.00 - Asda


Boudoir Heart Clock - £19.95 - Tesco
Wicker Heart Mirror - £34.99 - Dunelm
Pearl Heart Lamp - £15.00 - Wilko
Willow Heart Basket - £6.00 - Asda
Graham & Brown Hearts Corsage Wall Art - £17.50 - House of Fraser
Wooden Heart Tea Light Holder - £5.00 - John Lewis



Home Heart Oil Burner Gift Set - £7.00 - Asda
Catherine Lansfield Vintage Hearts Cushion - £12.00 - Littlewoods
Wooden Double Hearts Sculpture - £26.99 - Studio24
Home Sweet Home Wooden Heart - £4.00 - Wilko
Yankee Candle You Warm My Heart - £15.00 - Very
Hearts Rubber Doormat - £8.00 - Next
Cream wooden heart cutout drawers - £15.40 - Debenhams
Heart Birdhouse - £15.00 - Homebase

There is so many cute things...Is there anything you fancy?